What Is Cerebral Palsy?
Cerebral Palsy (CP) is a term used to describe a group of disorders affecting
body movement and muscle co-ordination. The medical definition of cerebral
palsy is a "non-progressive" but not unchanging disorder of movement and/or
posture, due to an insult to or anomaly of the developing brain. Development
of the brain starts in early pregnancy and continues until about age three.
Damage to the brain during this time may result in cerebral palsy.
This damage interferes with messages from the brain to the body, and
from the body to the brain. The effects of cerebral palsy vary widely
from individual to individual. At its mildest, cerebral palsy may result
in a slight awkwardness of movement or hand control. At its most severe,
CP may result in virtually no muscle control, profoundly affecting movement
and speech. Depending on which areas of the brain have been damaged, one
or more of the following may occur:
(1) muscle tightness or spasms
(2) involuntary movement
(3) difficulty with "gross motor skills" such as walking or running
(4) difficulty with "fine motor skills" such as writing or doing up
buttons
(5) difficulty in perception and sensation
These effects may cause associated problems such as difficulties in feeding,
poor bladder and bowel control, breathing problems, and pressure sores.
The brain damage which caused cerebral palsy may also lead to other conditions
such as: seizures, learning disabilities or developmental delay. It is
important to remember that limbs affected by cerebral palsy are not paralysed
and can feel pain, heat, cold and pressure. It is also important to remember
that the degree of physical disability experienced by a person with cerebral
palsy is not an indication of his/her level of intelligence.
Cerebral palsy is not a progressive condition - damage to the brain is
a one-time event so it will not get worse - and people with cerebral palsy
have a normal life-span. Although the condition is not progressive, the
effects of CP may change over time. Some may improve: for example, a child
whose hands are affected may be able to gain enough hand control to write
and to dress him/herself. Others may get worse: tight muscles can cause
problems in the hips and spine of growing children which require orthopaedic
surgery; the aging process can be harder on bodies with abnormal posture
or which have had little exercise.
Medically it is important to remember that Cerebral Palsy:
(1) is NOT contagious
(2) is NOT hereditary
(3) is NOT life-threatening
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Types of Cerebral Palsy
(A) Classification By Number of Limbs Involved
(1) Quadriplegia - all 4 limbs are involved.
(2) Diplegia - all four limbs are involved. Both legs are more
severely affected than the arms.
(3) Hemiplegia - one side of the body is affected. The arm is usually
more involved than the leg.
(4) Triplegia - three limbs are involved, usually both arms and
a leg.
(5) Monoplegia - only one limb is affected, usually an arm.
(B) Classification By Movement Disorder
(1) Spastic CP- Spastic muscles are tight and stiff, and have
increased resistance to being stretched. They become overactive when used
and produce clumsy movements. Normal muscles work in pairs: when one group
contracts, the other group relaxes to allow free movement in the desired
direction. Spastic muscles become active together and block effective
movement. This muscular "tug-of-war" is called co-contraction.
Spasticity may be mild and affect only a few movements, or severe and
affect the whole body. The amount of spasticity usually changes over time.
Therapy, surgery, drugs and adaptive equipment may help to control spasticity.
Damage to the brain's cerebral cortex is generally the cause of spastic
cerebral palsy.
(2) Athetoid CP- Athetosis leads to difficulty in controlling
and co-ordinating movement. People with athetoid cerebral palsy have many
involuntary writhing movements and are constantly in motion. They often
have speech difficulties. Athetoid cerebral palsy results from damage
to the basal ganglia in the midbrain. It was once common as a result of
blood type incompatibility, but is now rarely seen.
(3) Ataxic CP- Ataxic CP is the least common form of cerebral
palsy. People with ataxic CP have a disturbed sense of balance and depth
perception. They usually have poor muscle tone (hypotonic), a staggering
walk and unsteady hands. Ataxia results from damage to the cerebellum,
the brain's major centre for balance and co-ordination.
(C) Combined Classifications
The classifications of movement disorder and number of limbs involved
are usually combined (e.g. spastic diplegia). These technical words can
be useful in describing the type and extent of cerebral palsy, but they
are only labels. A label does not describe an individual.
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Causes of Cerebral Palsy
Any damage to the developing brain, whether caused by genetic or developmental
disorders, injury or disease, may produce cerebral palsy.
During pregnancy, anything which tends to produce a premature or low birth
weight baby who is not developed enough to cope with the stresses of independent
life will increase the likelihood of cerebral palsy. Factors which may
cause cerebral palsy include:
(1) multiple births (e.g. twins, triplets)
(2) a damaged placenta which may interfere with fetal growth
(3) sexually transmitted infectious diseases, e.g. AIDS, herpes,
syphilis, gonorrhea
(4) poor nutrition
(5) exposure to toxic substances, including nicotine, alcohol and
drugs
(6) Rh or A-B-O blood type incompatibility between mother and infant
(7) chromosome abnormalities
(8) biochemical genetic disorders
(9) chance malformations of the baby's brain
(10) a labour which is too long or to abrupt can cause damage.
Poor oxygen supply may destroy brain tissue.
(11) German measles during pregnancy
(12) small pelvic structure
(13) premature delivery
(14) caesarian or breech delivery
(15) effects of anesthetics, analgesics
In early childhood, cerebral palsy can occur if a young child's brain
is damaged by:
(1) infections such as meningitis
(2) brain haemorrhages
(3) head injury following falls, car accidents or abuse
(4) drowning accidents
(5) poisoning
Some measures of prevention are possible today. Pregnant women are tested
for the Rh factor and, if Rh negative, they can be immunized within 72
hours of giving birth. This prevents any adverse consequences of blood
incompatibility in a subsequent pregnancy. Newborns with jaundice can
be treated effectively with phototherapy.
Education programs stress the importance of optimal well-being prior
to conception and adequate prenatal care. Safety campaigns give advice
on protecting children from accidents and injury. These measures have
undoubtedly prevented many children from developing cerebral palsy.
Diagnosis
CAT scans (Computerized Axial Tonography) and MRI (Magnetic Resonance
Imaging), can help identify lesions in the brain. This technology may
enable some children who are considered at risk of having cerebral palsy
to be diagnosed very early. However, for the majority of people with CP
it will be months, and sometimes years, before a diagnosis is confirmed.
Many parents report that this waiting period, when they know their child
is not developing at the same speed as her peers, but they do not yet
know why, is particularly stressful.
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Living with Cerebral Palsy
Disability and Handicap
A person with cerebral
palsy has to cope with disabilities and handicaps. A disability is a physical
loss of function such as being unable to walk, having difficulty with
hand control or speech. A handicap is the degree to which that disability
puts you at a disadvantage in daily life. For instance, someone who is
very short-sighted may be considered to have a disability, but she is
unlikely to consider this a handicap if she has corrective lenses. A disability
may prevent someone with CP from climbing stairs, but this will only be
a handicap if the building she wants to enter is not wheelchair accessible.
CP is not a life-threatening
condition and, in itself, is no barrier to leading a long and productive
life. People with CP enjoy satisfying careers, university education, social
life, and become parents. Some limitations are unavoidable, but very few
people manage to achieve their dreams of becoming olympic athletes, concert
pianists or brain surgeons.
Some key elements
to minimizing the handicapping effects of cerebral palsy are:
(1) Attitudes:
It is very hurtful to have someone pat you on the head if you are sitting
in a wheelchair, or to walk away because they cannot understand what you
are trying to say to them. Prejudice and teasing can be very damaging.
A good sense of self-esteem is required to cope with these negative attitudes.
Children can also be handicapped if they are over-protected and become
too dependent. People with disabilities are people first and should never
be described by negative labels like "wheelchair-bound", "spastic", or
"afflicted with cerebral palsy". All people share similar needs, desires,
and responsibilities.
(2) Access:
You cannot lead an independent life if public buildings, washrooms and
transportation are not accessible. To have a good career you need educational
opportunities. To have a satisfying social life you need access to recreational
facilities and opportunities to develop friendships.
(3) Maintaining
Physical Health: A lifestyle that involves regular exercise and proper
nutrition is important for everyone, including those with disabilities.
A good general fitness level will help with range of motion and flexibility,
and exercise to improve cardiovascular fitness can improve endurance and
help offset age-related changes that lead to fatigue. A nutritious, high-fibre,
low-fat diet will help avoid problems with constipation and weight gain
and will increase energy levels. Having cerebral palsy does not make you
immune to other conditions. People with CP are as likely as anyone else
to contract heart disease, cancer or diabetes. Sometimes a change in the
body can be put down to an effect of CP when it is actually a different
condition.
(4) Aging and
Cerebral Palsy: Most treatment and research programs concern children
with CP and little research has so far been done on aging with a disability.
CP affects individuals in different ways and it is hard to generalize
about the effects of aging. Although people with cerebral palsy are considered
to have a normal life span, the physical challenges of CP may intensify
with age (such as increased spasticity, fatigue, loss of strength and
declining mobility), and these physical challenges can in turn lead to
increased stress and anxiety. Adults with cerebral palsy may consider
a number of strategies to cope with the effects of aging.
(5) Maintaining Mental Health: The importance of learning skills
to increase independence and self-confidence throughout an individual's
lifetime cannot be over-emphasized. The stresses associated with aging
will be lessened if a person is able to maintain a positive personal attitude,
if they are involved in meaningful activities, and if they have developed a
supportive environment. They need confidence to seek information, to plan
for age-related changes, and to be an active participant in their health
care and lifestyle choices.
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